top of page

Privacy Statement

Henrietta Lacks House is committed to the highest standards of protection for the personal information and privacy of its supporters. As part of this commitment, Henrietta Lacks House has adopted a privacy policy in line with the requirements of the Personal Information Protection and Electronic Documents Act. By accessing this website and/or engaging the services of Henrietta Lacks House, the user expressly consents to the collection, use and/or disclosure of personal information in accordance with the Henrietta Lacks House Privacy Policy which may be viewed below.

PRIVACY POLICY

Collection of Personal Information
Personal information that is collected by Henrietta Lacks House, its related companies and affiliates (collectively "Henrietta Lacks House") includes information about an identifiable individual such as the individual's name, address, e-mail and telephone number as well as their financial information (like account or credit card numbers) for payment purposes. Although personal information will be predominately collected from the individual, personal information may also be obtained, with the consent of the individual, from other sources (i.e. financial institutions, etc).

Nevertheless, any information obtained from such other sources will be subject to Henrietta Lacks House's privacy policy as if the information originated from the individual him/herself. General contact information is used to send products, information, fulfill orders or get in touch with users, if necessary, to solve problems or for marketing purposes. Financial information is used to bill the user for donations, or for products and services ordered by the user.


(a) Linked Sites and Affiliates:
Personal information collected from Henrietta Lacks House's affiliates, agencies and related institutions may also be combined with information obtained online at Henrietta Lacks House's website or at any of Henrietta Lacks House's customer service centres. Personal information collected may also be transferred both domestically and internationally to enable Henrietta Lacks House to more effectively manage our supporters information.

(b) "Cookies":
Henrietta Lacks House uses "cookies" to electronically collect information about the individuals who access the Henrietta Lacks House website. Information collected via "cookies" includes the response rate to banners that appear on our site, the service provider of the individuals accessing the site as well as their browser type (e.g. Chrome, Safari, etc.), and other statistical information regarding your usage of our services. Such information allows Henrietta Lacks House to assess the effectiveness of certain promotions and marketing campaigns.

Use of Personal Information

(a) By Henrietta Lacks House:
Personal Information collected by Henrietta Lacks House will be used to deliver services provided by Henrietta Lacks House to its customers, verify customer identity, verify donor identity, ensure proper billing information and measure user interest in various services. Personal information may also be used by Henrietta Lacks House or its affiliated or related companies to contact the user about special offers or promotions that may interest the user.

Except as provided herein, Henrietta Lacks House will not collect, use or disclose any personal information without first obtaining the consent of the individual customer to such collection use and disclosure. Henrietta Lacks House will make every reasonable effort to ensure that the individual is advised of the purposes for which the personal information will be used. Further, Henrietta Lacks House will only use the personal information for the purposes for which it was originally collected.

Except as provided herein, Henrietta Lacks House will never use personal information collected for a purpose other than the one under which it was originally collected without first obtaining consent of the individual for such alternate use. Furthermore Henrietta Lacks House will not release any personal information of a sensitive nature (i.e. gender, race, nationality, etc.) without the express consent of the individual to such release.

(b) Disclosure to Third Parties:
Except as provided herein, Henrietta Lacks House will not share the personal information of its customers with third parties except where such disclosure is consented to and except where such disclosure is necessary in responding to the customer's request for products or services. In such cases and where ever possible Henrietta Lacks House will request consent to third party disclosure at the time the personal information is collected.

(c) Disclosure required by law or under special circumstances:
Henrietta Lacks House will access, collect and/or disclose personal information where required to do so by law pursuant to a search warrant, court order or other valid legal request, or under special circumstances where there exists a good faith belief that such access, collection and/or disclosure are warranted. Examples of such special circumstances of collection and disclosure include medical or security reasons. 

Accuracy of and Access to Personal Information

Henrietta Lacks House strives to keep the personal information of its users accurate, up-to-date and complete for the purposes for which it is to be used. In this regard Henrietta Lacks House users can access their personal information at any time by contacting Henrietta Lacks House Customer Service and submitting a written request for such access. Henrietta Lacks House will provide the individual with particulars as to the disclosure of his/her personal information and shall provide the individual with access to that information. The individual will be able to challenge the accuracy and completeness of the information and have it amended as appropriate.

To gain access to personal information held by Henrietta Lacks House the individual making the request will be required to provide sufficient information to permit Henrietta Lacks House to provide an account of the existence, use and disclosure of the personal information. In particular, verification of identity by user identification or password will be required before access to personal information is granted.

Safeguards for Protection of Personal Information

Protection of personal information is of paramount importance to Henrietta Lacks House. As such Henrietta Lacks House has implemented security safeguards to protect personal information against loss, theft, and unauthorized access, disclosure, modification or use. Such safeguards include:
(a) restricted access to offices and records;
(b) security clearance measures and limited access on a "need-to-know" basis;
(c) use of passwords and encryption for access to records;
Access to personal information by Henrietta Lacks House employees is restricted to that which is necessary to perform their duties. Henrietta Lacks House employees are aware of the importance of maintaining the confidentiality of personal information and are committed to that end.

Any personal information collected by Henrietta Lacks House shall be retained only as long as necessary for the fulfillment of the purpose for which it was collected. Personal information that is no longer required to fulfill the identified purpose will be destroyed, erased or made anonymous. Henrietta Lacks House will take all reasonable care in the destruction of or disposal of personal information to prevent unauthorized parties from gaining access to the information.

Limits of our policy
This privacy policy only covers Henrietta Lacks House’s own collecting and handling of data. We only work with partners, affiliates and third-party providers whose privacy policies align with ours, however we cannot accept responsibility or liability for their respective privacy practices.

Our website may link to external sites that are not operated by us. Please be aware that we have no control over the content and policies of those sites, and cannot accept responsibility or liability for their respective privacy practices.

Changes to this policy
At our discretion, we may change our privacy policy to reflect current acceptable practices. We will take reasonable steps to let users know about changes via our website. If you are a registered user on www.helahouse.org , we will notify you using the contact details saved in your account. Your continued use of this site after any changes to this policy will be regarded as acceptance of our practices around privacy and personal information.

Complaints and Enforcement of Privacy Statement
As part of Henrietta Lacks House’s commitment to protection of its customers' personal information and privacy, Henrietta Lacks House welcomes comments, concerns and feedback regarding its adherence to its Privacy Statement. Henrietta Lacks House is committed to addressing and resolving in a timely manner any complaints or inquiries about our policies and practices relating to the handling of personal information.

Accordingly, any complaints or inquires should be directed to:
Email: info@helahouse.org
Mail: 200 West Madison St, Floor 2, Chicago, IL 60606

All complaints received by Henrietta Lacks House will be investigated and if justified, Henrietta Lacks House will take the appropriate measures, including if necessary, amending its policies and practices, to resolve the complaint.

COOKIES POLICY

What are cookies?


Cookies are very small text files that are stored on your computer when you visit some websites.
We use a combination of session cookies and persistent cookies in order to track how you use and experience our website, build anonymous statistical data about how our website is performing, and to power the personalization of website content to you.
You can find more information about cookies at www.allaboutcookies.org and www.youronlinechoices.eu.
Access to your personal information

You have the right to view, amend, or delete the personal information that we hold about you. To request access please email info@helahouse.org. We will provide the information free of charge and within one month, except in the event that the request is unfounded, excessive or repetitive, in which case we reserve the right to charge a proportionate administration fee or refuse.
Rectification of personal information

If any of the information we hold on you is inaccurate or incomplete, you may ask us to correct or complete it at any time.
Your right of erasure, or to be forgotten

You may request the deletion of any email we hold on you at any time.
Be aware that requesting deletion, unlike unsubscribing from specific emails, is total and irreversible. This means that we will also lose record of you having ever been on our systems, including any previous instructions you have given us opting out of specific email types. If you re-join our systems, by voluntarily providing your personal information, you will appear to us as a completely new data subject. This does not affect your other rights in any way.

To request deletion of your personal information, contact info@helahouse.org using the email address we hold for you or otherwise proving your identity.

Links to Other Web Sites

This privacy notice does not cover the links within this site linking to other websites. Those sites are not governed by this Privacy Policy, and if you have questions about how a site uses your information, you’ll need to check that site’s privacy statement.
Security

We take precautions to protect your information. When you submit sensitive information via the website, your information is protected both online and offline.

Wherever we collect sensitive information, that information is encrypted and transmitted to us in a secure way. You can verify this by looking for a lock icon in the address bar and looking for “https” at the beginning of the address of the web page.
While we use encryption to protect sensitive information transmitted online, we also protect your information offline. Only employees who need the information to perform a specific job (for example, billing or customer service) are granted access to personally identifiable information. The computers/servers in which we store personally identifiable information are kept in a secure environment.
 

bottom of page